Mar 15, 2011

Hope for a Cure

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Photo: Mark Busch/MySuburbanLife
Students at Riverside Brookfield High School collected nearly $600 to help a little boy in their community. 

They invited 7-year-old Ethan Tkalec to their school and made him an honorary RB "Bulldog" for the day.  They also presented him with a check for Hannah's Hope Fund.  The organization is funding research to help find a cure for Ethan's terminal disease.  


Ethan suffers from a rare nerve disorder called GAN (Giant Axonal Neuropathy).  He's one of 15 children in the world who are participating in a research study about his disease.  

The students at Riverside Brookfield wanted to support a member of their community, so they chose to raise money in honor of Ethan.


You can also learn more about GAN and it's scary prognosis.  Currently, being diagnosed with GAN is essentially a death sentence.  The parents below started Hannah's Hope Fund after their daughter was diagnosed.  Because the disease is so rare, limited information was available.  They took matters into their own hands and decided to work for information and for a cure.   Watch their inspiring story:

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